Endocrinology Visit

We saw Dr. Desrosiers at AP yesterday. He was great! He examined Ellis and his records and is concerned about his current rate of growth. He is more concerned about the lack of gain in height. Ellis weighed 9.4 lbs and was 28 inches. At his six month well check he was 17.1 pounds and 27inches. He also noticed that he should have more teeth. He thinks this is an odd time to see failure to thrive. He normally sees it right after birth or after two. This is the time when you should see rapid growth.

He feels that the next step will be to do growth hormone stimulation tests. However, these are pretty involved with different drugs, IV's etc, and he really tries to avoid doing them at this young of an age. Apparently, they will make Ellis pretty sick. So he wants to wait four months and see what happens with Ellis' growth. He's had so much done to him this past year. The hope is that if we leave him alone for a while maybe he will start growing.

The original growth hormone screens that were performed when his was at APH last month were negative. However, Dr. Desrosiers says that 70% of the time he finds deficiencies after doing the GH stim tests even though the screens were negative.

He also said he is not too concerned about the adenoma on his pituitary. He does not think that is what is causing the problem. However, he does think that it should be monitored.

We see the neurologist on Aug 2nd for a follow up. I will post the results after we see him.